Supporting Children and Families Living With Sickle Cell Disease

Victoria Community Based Organization (Victoria CBO) provides care, treatment access, psychosocial support, and community empowerment for people affected by SCD in Homa Bay, Siaya, and Kisumu counties.

Volunteer
Achievements
100
+ Families Reached
1
Partner Hospital
500
+ Community Members Reached in Awareness
12
Monthly Support Meetings Held
EMPOWERING FAMILIES WITH CARE, CONNECTION AND HOPE

Victoria Community Based Organization

We support families through treatment access, psychosocial counseling, patient follow-up, health education, and community empowerment.

Quick Stats / Highlights

  • 100+ patients enrolled since January 2025

  • Monthly support group meetings and counseling

  • Active referral pathways at Hawi Hospital

  • Expanding to Siaya and Kisumu counties

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MEASURING IMPACT THROUGH LIVES TRANSFORMED

Our Impact So Far

Achievements

  • Enrolled 100+ patients into the SCD support program

  • Conducted monthly support groups led by pediatric specialists

  • Established referral and follow-up pathways at Hawi Hospital

  • Reached hundreds through community awareness and outreach activities

Impact Story (Short)

“Before joining the program, my daughter often missed treatment because we lacked transport and support. Today, she rarely misses a clinic visit and feels confident attending school again.”
— Caregiver, Oyugis

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COMPREHENSIVE COMMUNITY-BASED SOLUTIONS FOR SICKLE CELL DISEASE

What We Do

01.

Sickle Cell Care & Support

We register patients, track their progress, offer psychosocial support, and run monthly support group meetings to strengthen families and caregivers.

02.

Access to Treatment & Diagnostics

Linking patients to outpatient and inpatient care, advocating consistent medication supply, helping improve access to essential diagnostics

03.

Capacity Building for Health Workers

We train healthcare providers and community health volunteers to improve SCD diagnosis, management, and follow-up in rural and peri-urban facilities.

04.

Community Education & Awareness

We run awareness campaigns to address myths, reduce stigma, and empower communities with accurate information about sickle cell disease.

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BECAUSE NO FAMILY SHOULD FACE SICKLE CELL ALONE

From Our Founder

“Victoria CBO was born from witnessing the silent suffering of children and caregivers struggling with sickle cell disease—lack of diagnosis, lack of medication, stigma, and daily fear. I felt compelled to act. Today, we stand as a community of hope and strength, walking alongside affected families to ensure they receive care, support, and dignity.

Thank you for standing with us as we work to transform lives across Homa Bay, Siaya, and Kisumu.”

– Lilian Were, Founder & Director

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You Can Make a Difference Today

Donate

Your support helps provide diagnostics, medication, and psychosocial care.

Partner With Us

Join health institutions, companies, and donors supporting SCD care in western Kenya.

Volunteer

Healthcare professionals and community volunteers are welcome.

Register a Patient

Get access to support groups, treatment linkage, and counseling.